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Equity Working Group

The Equity Working Group (EqWG) promotes and supports progress towards equity in the HCA. The EqWG seeks to engage the global community spanning diverse geographic and ethnic groups to drive inclusive representation and participation, and promote equal benefit from the HCA.

The EqWG’s initial focus is on empowerment to participate in the HCA through outreach, education, and training. The EqWG is co-chaired by Alex Shalek (shalek@mit.edu), Partha Majumder (parmaj2023@gmail.com) and Musa M Mhlanga (musahca@mhlangalab.org).

The HCA Equity Working Group has released several publications and statements on its goals and activities:

HCA Diversity Task Force (DTF)

This task force will examine issues related to the tracking and sampling of diversity in HCA data. The responsibilities of this Task Force will be to develop recommendations for:

  • Appropriate metrics and resolutions for tracking genetic and geographical diversity in HCA;
  • HCA goals for genetic and geographical diversity, as well as a timeline for achieving the goals;
  • Ethically- and scientifically-appropriate processes for engaging underrepresented populations in sampling and monitoring efforts;
  • The use of diversity-related metadata across all HCA data platforms, including appropriate metadata fields, definitions, and/or ontologies.

It is important to note that genetics and geography are not the only two elements of human diversity in the context of HCA. However, the Task Force will focus on these two aspects of diversity since they have well established biomedical significance and are potentially amenable to standardization across the HCA, but at the same time raise substantial issues of ethics, equity and prioritization that must be addressed.

The Task Force will be co-chaired by Shyam Prabhakar, Kian Hong Kock and Sophia George.  The Chairs will be responsible for reporting the group’s recommendations to the EqWG and (after EqWG approval) other HCA groups including the OC, the Genetic Diversity Biological Network, and the new Data Ecosystem Oversight Group.

Regional Networks

In 2017 HCA began expanding its outreach and capacity-building efforts. The goals of the regional networks are to help facilitate scientific and organizational efforts at the regional level.

Current networks:

Sami Al Garawi

King Abdullah University of Science and Technology, Saudi Arabia, Middle East

Gordon Awandare

WACCBIP - University of Ghana, Ghana, Africa

Alex Bernier

McGill University, Canada

Alistair Forrest

Harry Perkins Institute of Medical Research, Australia

Lucio Freitas-Junior

University of Sao Paulo, Brazil, South America

Muzlifah Haniffa

Wellcome Sanger Institute/Newcastle University, UK

Emily Kirby

McGill University, Canada

Partha Majumder

John C. Martin Centre for Liver Research & Innovations and Liver Foundation, West Bengal, India

Musa M Mhlanga

Radboud University, The Netherlands

Shyam Prabhakar

Genome Institute of Singapore, Singapore

Saha Senjuti

Child Health Research Foundation, Bangladesh, Asia

Alex Shalek

MIT | Ragon | Broad, USA

Christine Wells

University of Melbourne, Australia

Equity Working Group Members

Samira Asgari

Icahn School of Medicine, USA

Ponpan Matangkasombut Choopong

Madihol University, Thailand

Robert Cook Deegan

Arizona State University, USA

Gideon Cornel Msee

University of Edinburgh, UK

Sophia George

University of Miami, USA

Youssef Idaghdour

NYU Abu Dhabi

Kian Hong Kock

Genome Institute of Singapore, Singapore

Vinicius Maracaja Coutinho

University of Chile, Chile

Drew Neavin

Garvan Institute, Australia

Alycia Noë

McGill University, Canada

Yukinori Okada

Osaka University and University of Tokyo, Japan

Shyam Prabhakar

Genome Institute of Singapore, Singapore

Patricia Severino

Albert Einstein Research and Education Institute, Brazil

Diversity Task Force Members